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Community => General Discussion => Topic started by: SSH on Wed 25/08/2004 18:42:13

Title: The Long Overdue Post Your Chronic Illness here
Post by: SSH on Wed 25/08/2004 18:42:13
Actually, I was more looking for anyone with diabetes who could tell me that they get by fine despite it, becuase my wife unfortunately had to go into hospital last week with hyperglycemia (high blood sugar) and hyperketosis (toomuch fat being metabolised). These are particulalrly worrisome due to the pregnancy, although it is the pregnancy that has caused them. She's worried thoguh that she could have diabetes permamnantley (of which there is a small but tangible risk) although her (much milder) case did go away after our first child.

So, if you've got diabetes and you get by fine, then please post here, or PM if you prefer to keep it private. But also, I thought it might help some people if they could share their experience with other chronic illness. Of course, no doubt there will be a few jokes about some VD or whatever, but I think there can be some support on this forum, and not just on the best way to use SetCharacterTransparency...

Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: dasjoe on Wed 25/08/2004 19:00:05
just some links for you. i haven't got diabetes, a friend of mine does.
she's pretty normal, doesn't need to live on a diet, but she has got a pump which is permanently (not permanently but nearly all the time, you can take it off) connected to her.
all i can tell is she lives like everybody else, does the same things as (syntax?) we all do.
some years ago she had a syringe for giving herself the insuline, now the pump does that.
if it's not permanent a syringe would be the better solution, you don't have to think of your pump and don't need to put tape on the permanent needle when you're bathing.

just ask me about it, and i'll report what she says.
i hope this helps and your wife is feeling better soon.

http://www.diabetes.org/home.jsp
http://www.diabetes.org.uk/home.htm

i should go to gb and learn proper english.. this sucks, some words are just missing..
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Ishmael on Wed 25/08/2004 19:30:56
I am quite unique. [sp?]

Anyone ever heard of something called Achromatopsia?

Well, to basically explain it's genetically transferred, and only appears on half of the children when both of the parents have the gene. (This means my parents are most likely related, from somewhere wayy up the family trees). I'll quote the dictionary: "a visual defect marked by total color blindness in which the colors of the spectrum are seen as tones of white-gray-black", also, " the ability to see daylight missing", don't know how to actually say that in english, but basically I need to squirt all the time, and outdoors I need very very dark sunglasses so the sun (even if behind a cloud) won't disturb my vision. And one other thing, I see quite less as accureately as normal people. I need glasses of nearly +4, tinted ones. It's like setting your screen to a lower resolution, or trying to see detail in a photograph resized to quarter of it's original size.

Really hard sometimes, but I live and study like everyone else (apart from the fact that I'm nearly insane...), I need to look at stuff much closer then others. MUCH closer. I need to sit 2-1½ meters from the TV to see the subtitles. (we have a quite big widescreen TV...)

Read something about it here: http://www.achromatopsia.org/
(heh, "wobbly eyes", new expression to me, I know what it means, I at least sort of have it)


Capich?

----- EDIT: I friggin cannot even type my chronical illness right... -----
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: R4L on Wed 25/08/2004 19:43:06
I betcha someone in the forums is a Chronic Masturbator! :D
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Ishmael on Wed 25/08/2004 19:44:02
Your lightweighted aproach to this matter disturbs me, but I do posses a sense of humor :P
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Haddas on Wed 25/08/2004 20:00:52
I, to a certain degree suffer from chronic paranoia. Combine this with a hyperactive imagination and watch a scary film. I have lots of weapons in my room, just INCASE someone would try to kill me. I can't watch some scary films. Anything with zombies in it usually makes me lose sleep. I try telling myself " Come on, you're being silly! Being scared of those things is childish!" Then I feel bad and scared.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Pet Terry on Wed 25/08/2004 21:05:58
My friend has had diabetes for over ten years now. He lives pretty much like everyone else, though he has syringe and he have to give himself insuline few times per day. He used to carry pack of raisins with him incase he started feeling dizzy, but nowadays he just has chocolate or something sweet. So if you don't know about his diabetes, I bet you wouldn't know he has it.

EDIT: Eep, somehow I got cinnamon and raisins mixed up.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Mephistophilis on Wed 25/08/2004 21:37:46
I think one of my mates is Achromatiosiac It is a think but He's Colourblind and wears most funky Shades all the time. Personally I think I'm a partial Insomniac, It takes me Ages to get to Sleep... Kinda sucks.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: on Wed 25/08/2004 21:57:12
My little sister just contracted type 1 not too long ago. here's how we get thru it..
We're trying to get an insulin pump. no shots, and easier to regulate
take advantage of the atkins craze..all this low carb stuff is great for diabetics.
It isnt too bad I guess...you have to be very aware of your blood sugar, and always carry around some gum or some juice or something, and eat at regular times. Its a pain, but very managible.

for more info, go ahead and email me, pandaman424@yahoo.com
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: R4L on Wed 25/08/2004 22:02:34
Sorry for the humor I had in this thread. I didn't realise how serious this was. My Grandma Everson died from diabetes...
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Mr Jake on Wed 25/08/2004 22:06:47
and about the life style change
You can get Special cakes and all sorts for diabetes, you dont REALLY need to go without anything, you can still have some sugar you just have to cut back (quite alot, but you can still have the odd bit) (depending on how serious it is) Im sure she will do fine... she puts up with you well enough....Ã,  ::)

edit:
I also have this problem:

I, to a certain degree suffer from chronic paranoia. Combine this with a hyperactive imagination and watch a scary film

(taken from Haddas's post)


(duh)
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: SSH on Wed 25/08/2004 22:38:40
She actually has to keep her ketones down as more important than blood sugar. A few high readings on the blood sugar don't makea difference   (and just mean a bit more insulin is required anyway) but the ketones can lead to acid blood which can damage the baby. So she has to eat lots of carbs and avoid vomiting (she's on anti-naseau medication too).
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Nacho on Wed 25/08/2004 23:48:20
I have a disease in the neural cells in charge of the motion. It is slightly related with Stephen Hawkings' disease, but don't be afraid, people who loves me! it's not so serious, no way. It is quite annoying... I can't play the guitar because my left hand is weak (I can't light on a lighter). There is a big list of a lot of little and silly things I can't do, but it's not serious at the moment.

I was diagnosed 12 years ago, and it hasn't advanced a lot... The doctor is very happy with me, and I'll go on doing sport, because, apparently, it helps in my case.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Darth Mandarb on Wed 25/08/2004 23:59:39
I'm mildly dislexic (meaning I see things backward) and for years, when we didn't know it, most people just thought I was stupid.

I taught myself to work around it, but it still slips in every now and then.

Sometimes it happens when I write too.Ã,  I have to visualize everything I write to ensure I don't write it wrong.

A fun part of it is that I'm pretty good at pronouncing words backward ... which can be fun at gatherings!
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Mr Jake on Thu 26/08/2004 00:04:07
Quote from: Darth Mandarb on Wed 25/08/2004 23:59:39
I'm mildly dislexic (meaning I see things backward) and for years, when we didn't know it, most people just thought I was stupid.


Im starting to think that I have the same sort of thing (Ive noticed recently that sometimes I read numbers completly wrong and jumbled up etc. and I have never been good at spelling etc.)
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Shane 'ProgZmax' Stevens on Thu 26/08/2004 00:51:47
As a child I had one of the worst cases of Asthma the state I lived in ever saw.  I basically would spend months at a time in the hospital on respirators with an IV in each arm, and at that time I was allergic to something like 120 allergens (incredible!).  As I've gotten older, fortunately, I have overcome Asthma and instead of taking pills and using an inhaler every day I get by with an inhaler every once in awhile.  Another bonus is that I tend to have fewer seasonal allergies than other people since my immune system has been fighting for so many years.  There were a couple times where I could have died as a kid, but I was lucky to have parents that didn't take chances and took me to the hospital.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: rtf on Thu 26/08/2004 01:17:51
I have a tiny tiny tiny bit of autism (about 1%), and I have a little bit of OCD. Both are genetic.Ã,  I was really hyper from about 1st Grade to 5th grade, but I'm proud to say that that's all changed

I had surgery to replace 2 hearing bones with a titanium alloy a year ago, and I got my tonsils out.

My teeth suffer from Misalignment Position, but treatment is underway (and it sucks).

One of my best friend's older sister, and one of my younger sister's friends have diabetes.  They are doing great (although I haven't seen my friend's sister in a few months because she is abroad).
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: AGA on Thu 26/08/2004 01:18:57
I'm diabetic, and have been since I was about 18 months old.

It'll probably take awhile for your wife to get used to having to watch what she eats, limit her carbohydrates etc, but it hardly stops you living a normal life.

One of the biggest myths about diabetes is "you can't eat sugar", which is crap. You can eat as much sugar as any ordinary person would, you just can't eat as much as a fat person would :P
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: MrColossal on Thu 26/08/2004 02:30:48
Then I think us Mitteners should talk to you about your soda intake, AGA...
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: remixor on Thu 26/08/2004 02:40:40
I have a rather severe case of scoliosis, but it's congenital, meaning I've had it from birth rather than developing it due to poor lifting habits or sports or something like that.  Basically my spine curves twice at about a 90% angle.  It evens out such that I still stand up straight (though I have to consciously put effort into it or I'll sort of slouch to the left a bit) but I'm a whole lot shorter than I should be (I'm incredibly short, whereas everyone else in my family is quite tall).  I've had three major back surgeries in my life (one was when I was only a few weeks old though so I don't remember anything about it) and two spinal fusions.  When I was in kindergarten and very early elementary school I had to wear a back brace all the time, which was pretty shitty considering how mean kids can be at that age.  Pretty much I can't play contact sports and I have to be really careful about impact to my neck or spine.  I think at this point the condition is fairly stabilized, which means it probably won't get worse, or at least it will be such a small gradual change that it's not a big deal.  The downside is that so much work has been done to keep it from getting worse that if in the future some sort of revoloutionary treatment is discovered it'll probably be too late to do any good for me.  Overall it's not really a big deal, though.  Since it's been a lifelong condition (like most of the stuff people here have described) I'm pretty used to it.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Larien on Thu 26/08/2004 02:46:50
I'm diabetic, as well. Ã, I've had it since I was a little under three. Ã, Sugar itself doesn't really affect mine (which probably seems a little odd, yet is true), but starchy foods that turn into sugar do, so I have to watch about eating too much stuff like potatoes and bread and such.
After I started high school, I got in with a whole new group of friends than the ones I'd had from childhood, and half those friends truly had no idea that I was diabetic until I told them. Ã, 
It's not a hard thing to manage, though insulin shots aren't exactly fun. Ã, You do get used to those after awhile, however, and there's always the option of a pump.
I forgot about keytones, man. Ã, Sorry. Ã, Those are definitely something she should watch, SSH. Ã, Did the doctor give her a list of the best stuff to eat to keep those down?
Anyway, I hope your wife feels better soon. Ã, Diabetes is sometimes a little hard to accept, but if she has to do it, I'm sure she'll have no problems adapting to it. Ã, It doesn't actually require a 360 degree lifestyle change like most people would think.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Fizz on Thu 26/08/2004 07:48:40
i have tinitus... is that a disease? too many concerts i guess...
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Ishmael on Thu 26/08/2004 08:20:12
I'm back up with the listing, with better time. Last night I only had few minutes to finish my post... so...

I suffer from three little sisters, it's not from birth, it devlopped in four first years of my life... what??

Someone mentioned insomnia? I used to have something like it, I used to lay hours in my bed before getting to sleep. Nowdays (I'm older, my parent's won't bother me about ti so damn much anymore) I do something - like listen to music, read, or just fool around with the stuff I find when get caried away searching one of those piles of stuff that get gathered in my room - untill it's so late that I have to go to bed so I can get some kind of sleep so I wake up in time, or untill I start feeling too tired. I think I should see if I still have that little bit of it, and start going to bed really early, as the changes are I'd have a decent dream again... (I had a really bizarre dream a few nigths ago, I slept until 9:30AM or something, as I normally would have to wake up around 7AM, but no school that day...)

I've met a girl (and unfortunately had to spend a year with her, same class you see) who suffered from about everything, apart from diabetes... well, not of everthing, she only had had like three lobotomies (sp), she has pipe vision (like looking throught a binocular that does not magnify at all), she cound't see things that don't move very well, and she was stubborn, loudvoiced, ans extremely stupid. I'm gald she's most likely one of a kind.

I do understand I should not mock anyone with a disease, I am one of them after all, and I've see a lot, and grown to understand, but there is NO PERSON on earth who would understhand her.. not for long anyway. I withnessed a relationship with her and a boy from a lower grade, the relationship lasted six weeks, untill he ended it. And his comments were along "She is horrible! I shouldn't ever have started that thing" or something... I won't go on about this anymore, I have used up enough bandwith already.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: AGA on Thu 26/08/2004 10:18:21
Quote from: MrColossal on Thu 26/08/2004 02:30:48
Then I think us Mitteners should talk to you about your soda intake, AGA...

The my drinking shitloads thing is more of a habit by now than anything. It is true that diabetics need to drink loads when their blood sugar level is high, but I just sort of got used to drinking loads when I was younger, when my diabetes was a lot more poorly controlled. I could theoretically cut down and not be left thirsty, I just can't be bothered.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Privateer Puddin' on Thu 26/08/2004 10:32:30
Having met AGA twice, i would never have guessed he was diabetic.

I have dyslexia but try not to make it too obvious.

edit: petes reply reminded me, i'm practically deaf in one ear
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Pet Terry on Thu 26/08/2004 11:09:18
About eight years ago my school doctor found out that my hearing is under the what it is on average person. Basically that means that I have hard time hearing high pitched sound or whispering for example. Like, if my cell phone rings in the next room, I might not hear it. When studying languages I have never been really good with listening comprehension tests. I also have tinnitus, but I don't usually notice it until I'm alone and it is rather quiet. I'm not sure why my hearing is what it is, but my parents and doctors are suspecting it's because when I was about 4 years old I had ear infection and I refused to take the medicine. Mind you, I remember the whole thing. It was horrible and the medicine tasted really bad. The other reason might be that I got a walkman when I was about eight years old and I listened it quite much, but I can't tell if I had the volume too loud.

It's annoying at times. Especially if people don't know about it and I go 'Sorry? or 'Huh?' every now and then after they have said something. Especially this happen with new people, but I always get used to their speaking and after a while understand them pretty easily. Another thing is that I'm very musical. Fortunately my hearing hasn't affected that in any way, but I don't know what I would do if one day I went compeletely deaf...
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: M on Thu 26/08/2004 12:50:54
Woh tough man. Well, seeing us everyone seems to be a lot sicker than I would have thought, I'll share mine.

I've got this piece called Coeliac Disease (pronounced see-lee-ack). What it basically means I have an intolerance to gluten, so I'm not really supposed eat food with gluten in. When I was younger I missed a lot of school because my parents didnt realise I had it, and I kept eating glutenous food. The problem is most food has gluten in - most things made with bread for example. But a lot of places make 'gluten-free' food now which is handy. Anyway, I've come to accept it. Not as severe as some of the over ailments here and I don't treat it as an issue any more. I still have glutenous food occassionally and I'm fine now. I think its if I eat it regularly problems might begin again.

*ahem* Well, that's mine.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Babar on Thu 26/08/2004 12:56:17
I am half blind in my right eye. It has something to do with the fact that my family kept a ton of dogs when I was younger, and I was quite close to them. Something about the dog hair. The result is that I have really bad perception. This unfortunately means I SUCK at a LOT of sports. Balls more often hit my head than me catching them.
I also have this weird compulsive habit. I am not sure if it is a chronic illness, but it is like if I lock my door, a few seconds later I have to check again to make SURE that I locked it, even though in my head I know that it is locked. Small stuff like that.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Mr Jake on Thu 26/08/2004 13:07:14
yeah some people get that really bad, like they will flip the light on and off 9 or 10 times to make sure they have actually done it
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: M on Thu 26/08/2004 13:11:26
There was a thread about compulsive stuff like that a while ago.
There it goes (http://www.agsforums.com/yabb/index.php?topic=6790.0). I used to have some myself.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: DragonRose on Thu 26/08/2004 14:02:14
I have bronchial asthma.  This means that the bronchial  tubes in my throat go into overdrive when I come into contact with my triggers or I do something aerobic.  I'm really lucky in that my only main trigger is cold air, so I don't have to worry about animals or pollen or anything like that.  However, I'm really unlucky in that my main trigger is cold air, and I live in Canada.  Early mornings are already cold enough to set me off.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Kinoko on Thu 26/08/2004 14:38:21
Man, I don't have anything. I feel like such a freak. My swimming teacher used to say my hip was out of joint! I once had ring worm... I have a severe fear of cutting my hair short.

*sigh* Nothing.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: auhsor on Thu 26/08/2004 15:39:22
Thats the same with me Kinoko. As far as I know, there is nothing majorly wrong with me. I know that I will develop a bad back when I'm older due to my posture now. I also know that I will need glasses soon. Probably next time I go to the optometrist. But that is a more common thing than what other people have here.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Blackthorne on Thu 26/08/2004 16:01:16
Well, if anyone remembers the thread a while back, about weird medical experiences, you'd know that I suffer from Chronic Glomular Nephritits, which is now an End Stage Renal Disease.  Meaning that both my native kidneys in my body have failed (Either dead, or less that 10% of the nephrons functioning).

Kidney diesease is pretty awful, and I never thought it would happen to me.  It clouds my life a bit, having to undergo dialysis for about a year was tough.  But, there are people that are on dialysis for years, and I was lucky enough to undergo a Kidney Transplant about a year after my diagnosis (and near death experience!).  My father donated one of his kidneys to me, which was incredibly generous of him considering I'm a lazy pontificating bastard - but seriously, I got a chance that some people wait YEARS for, or never get at all. 

The transplant hasn't been perfect, and there has been lots of problems, but I haven't had to do dialysis since November of 2003.  Dialysis is awful.  When I think about it...... it makes me shudder.  Anyway........ along with all the typical dramatic bullshit that goes along with such an event, there's been plenty of funny stories about it too.  Makes for an interesting life, that's for sure!

Bt
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Haddas on Thu 26/08/2004 16:22:02
Quote from: Petteri on Thu 26/08/2004 11:09:18
About eight years ago my school doctor found out that my hearing is under the what it is on average person. Basically that means that I have hard time hearing high pitched sound or whispering for example. Like, if my cell phone rings in the next room, I might not hear it. When studying languages I have never been really good with listening comprehension tests. I also have tinnitus, but I don't usually notice it until I'm alone and it is rather quiet. I'm not sure why my hearing is what it is, but my parents and doctors are suspecting it's because when I was about 4 years old I had ear infection and I refused to take the medicine. Mind you, I remember the whole thing. It was horrible and the medicine tasted really bad. The other reason might be that I got a walkman when I was about eight years old and I listened it quite much, but I can't tell if I had the volume too loud.

It's annoying at times. Especially if people don't know about it and I go 'Sorry? or 'Huh?' every now and then after they have said something. Especially this happen with new people, but I always get used to their speaking and after a while understand them pretty easily. Another thing is that I'm very musical. Fortunately my hearing hasn't affected that in any way, but I don't know what I would do if one day I went compeletely deaf...

Petteri, I have the same thing, except tinnitus. I also go "huh?", and "what?" all the time, even when standing right in front of people. My hearing was also reduced by an ear infection left untreated. It's stupid when some people don't believe you when you tell them you don't hear all too well. But it's also awesome in ways. I hear bassy music almost twice as bassy as I did before ;D
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Oliver on Thu 26/08/2004 17:34:18
my chronic illness is playing the guitar.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Grundislav on Thu 26/08/2004 18:50:17
Quote from: Privateer Puddin' on Thu 26/08/2004 10:32:30
Having met AGA twice, i would never have guessed he was diabetic.

Well for one thing, he doesn't go around injecting himself with insulin in front of everybody (something which another diabetic friend of mine does, which creeps me out cause I hate needles!)
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: viktor on Thu 26/08/2004 19:51:20
I hate them to. I'm actualy darn scared of them. Maybee becouse when I gawe blood a few years back, the nurse mutilated my hand.
But back to the topic. I hawe to much stomach acid. So i'm not alowed to eat anything sour or anything that would stimulate the acid (like chewing gum).
It's not a MAJOR problem. Just a few pains in my stomach here and there. But I did hawe to go on a test (I don't know what it's caled in englesh, but in slovene it's caled gastroskopija).
Man that hurt. The put a few cm thick hose in my mouth and all the way down to the stomach. But I gues I'm lucky I didn't hawe to go to a koloskopija (they push a hose up your ass). :P
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Blackthorne on Thu 26/08/2004 20:50:53
Hate needles, huh?Ã,  Try dialysis. They stick TWO 14 gauge needs in your arm to draw all the blood in your body into a machine that cleans it.

(http://www.bioteq.com.tw/bioteque/images/av-fistula-needle-all.jpg)

For graphic pictures of the actual process click here for more information (http://www.burns62.com/dialysis/1hello.htm)
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Ishmael on Fri 27/08/2004 08:13:56
During last year I also partially forgot how to speak... it's not chronical, it's because of our drummer, and maybe partially because of that idiot I mentioned earlier... But I'm getting back to usual, I still (on the phone with my friends) go all gibberish sometimes...

But of what you people have brought up, I do that checking things five times after too... like, When I lock the keypad of my cellphone, I look at the screen several times to make sure I see the key icon on the screen...
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: on Tue 28/09/2004 02:44:37
Quote from: Blackthorne on Thu 26/08/2004 16:01:16
Well, if anyone remembers the thread a while back, about weird medical experiences, you'd know that I suffer from Chronic Glomular Nephritits, which is now an End Stage Renal Disease.Ã,  Meaning that both my native kidneys in my body have failed (Either dead, or less that 10% of the nephrons functioning).

Kidney diesease is pretty awful, and I never thought it would happen to me.Ã,  It clouds my life a bit, having to undergo dialysis for about a year was tough.Ã,  But, there are people that are on dialysis for years, and I was lucky enough to undergo a Kidney Transplant about a year after my diagnosis (and near death experience!).Ã,  My father donated one of his kidneys to me, which was incredibly generous of him considering I'm a lazy pontificating bastard - but seriously, I got a chance that some people wait YEARS for, or never get at all.Ã, 

The transplant hasn't been perfect, and there has been lots of problems, but I haven't had to do dialysis since November of 2003.Ã,  Dialysis is awful.Ã,  When I think about it...... it makes me shudder.Ã,  Anyway........ along with all the typical dramatic bullshit that goes along with such an event, there's been plenty of funny stories about it too.Ã,  Makes for an interesting life, that's for sure!

Bt

Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Anarcho on Tue 28/09/2004 03:58:39
I have a bad case of Ewing's Tumor.  Also, I see everything twice.

But seriously, I grew up having Night Terrors.  They know more about them nowadays, but when I was a kid, the doctors just couldn't get enough of my violent bouts of sleep-walking/running hysteria.  I would seriously get up in the middle of the night, convinced that my bed was upside down or dinosaurs were on the loose, and run around the house, smashing my head against the refridgerator and slapping around my sisters.  No joke.  They put me on epilepsy medication, the only side effect of which was "severe drowsiness and confusion."  AWESOME! 

I use taking that shit for fifteen years as an excuse for whenever I feel inadequate/less awesome than say, Brian Wilson, Bob Dylan, Einstein, or maybe Tears for Fears.

Wow, this is getting personal.  AGS Forum, are you my lover now?

-Logan
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Gregjazz on Tue 28/09/2004 04:39:00
I'm colorblind and have a tad of scoliosis (I think). I also have to wear contact lenses in both of my eyes.

But it's cool, and I'm fine.

Okay, that's my medical report.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: DeadlyJynx on Tue 12/07/2005 23:12:40
You may find this funny.. cuz i do...


Whenever i listen to a certain genre of music.... i take teh mood of the song...

so when i listen to punk... i break stuff...


wierd eh...

I was listening to Getting away with murder by Papa Roach yesterday... and the next thing i knew... the glass of pepsi in my hand broke... and i didnt feel a thing... it just broke...



prolly nutin wierd about the las part... but i do very much so take on a different mood with every song...
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Ishmael on Tue 12/07/2005 23:41:49
Quote from: Plague on Tue 12/07/2005 23:12:40
Whenever i listen to a certain genre of music.... i take teh mood of the song...

so when i listen to punk... i break stuff...

Right. Then PLEASE don't listen to Sentenced's Excuse Me While I Kill Myself (at least not on my recommendation := )...
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: DeadlyJynx on Wed 13/07/2005 00:11:19
will do...


i nearly broke a guy hand when he pissed me off.. while i was listening to prayer by disturbed...


Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Darth Mandarb on Wed 13/07/2005 00:27:45
I have a chronic illness of sending messages to people whose sig file image is WAY too big.

Like when they have a height of 125 pixels and they should be no taller than 50 pixels like it specifically says directly above where you have to enter the information for the image ...
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Squinky on Wed 13/07/2005 00:36:47
Quote from: Plague on Wed 13/07/2005 00:11:19
will do...


i nearly broke a guy hand when he pissed me off.. while i was listening to prayer by disturbed...




I just made up a song for you, heres how it goes:

"Yeah yeah yeah"
"Quit Being a dumbass"
"Yeah yeah yeah"

If that helps you with your problem, I can maybe record it for you...
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: earlwood on Wed 13/07/2005 00:37:36
Woah nelly Plague! Ã, I think you should open an ear to Have you Never Been Mellow, or just calm down a bit...
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Tiki on Wed 13/07/2005 02:38:41
Well, since the thead's been bumped...

I have sucky eyes.  It's not a chronic illness per se, but heck, neither are many of the other things here!

I became cross eyed as an infant, had a surgery in preschool which kinda fixed it, had another one in 1st grade and the latest in 3rd grade.  Now, I have a lazy eye, but can control it (make it normal again, etc.).  It usually only goes out when I'm tired or bored, because I don't notice the double vision as well.  A fourth surgery seems unlikely at this point.  Ooh, right, and I am also nearsighted, have a strong astigmatism, and some other small, random problems.  Meaning, without glasses, everything is blurry.   :P

I also tend to do things, be positive that I did indeed do them, but run back to make sure anyway.  "Did I close that door?"  etc.

Hoo-hah!
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: BerserkerTails on Wed 13/07/2005 03:45:51
My mother has diabetes, and she's been doing fine. It's amazing some of the technological leaps there's been, such as those little Insulin Pen thingies.

As for myself, I swear I have a mild case of OCD. It's not too terrible, but there are some things that if I don't do in the correct order, it'll bug me for an hour or so.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Gregjazz on Wed 13/07/2005 05:58:31
Quote from: BerserkerTails on Wed 13/07/2005 03:45:51
My mother has diabetes, and she's been doing fine. It's amazing some of the technological leaps there's been, such as those little Insulin Pen thingies.

As for myself, I swear I have a mild case of OCD. It's not too terrible, but there are some things that if I don't do in the correct order, it'll bug me for an hour or so.

Hmmm... if I leave a refridgerator door closed, but not completely closed for sure, it bugs me. I have to open the door and close it again.

Also if I squeeze a ketchup bottle when I'm using it, but close the bottle too fast, so it's remains partially squeezed because of the pressure inside -- that bugs me too. I have to open the ketchup bottle and let all the pressure out and then close it again. :P

I wash my hands a lot, too. Well, not an unusual amount, but sometimes my hands feel a little bit dirty and I have to wash them to feel better.

EDIT: Or if a pencil is slowly rolling off a table... I HAVE to stop it from falling off the table. It bugs me. I'm a weirdo. :(
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: PsychicHeart on Wed 13/07/2005 06:18:13
a small amount of ADD, but it isn't too bad. it isn't like i am hyperactive or anything, but sometimes i can get pissed easily.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: DeadlyJynx on Wed 13/07/2005 07:05:17
Quote from: Squinky on Wed 13/07/2005 00:36:47
Quote from: Plague on Wed 13/07/2005 00:11:19
will do...


i nearly broke a guy hand when he pissed me off.. while i was listening to prayer by disturbed...




I just made up a song for you, heres how it goes:

"Yeah yeah yeah"
"Quit Being a dumbass"
"Yeah yeah yeah"

If that helps you with your problem, I can maybe record it for you...


lol sure... lol


I have H.A.D.D but its controlled now....

and had a heart murmur... but it closed up like last week... lol when i was 2 it closed up.

Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: RickJ on Wed 13/07/2005 08:32:17
I'm also a diabetic for about 10 years now and get along just fine.   AGA is right about  the "you can't eat sugar" thing.  It's all about carbohydrate intake.   

When I first found out I read a lot and measured my blood sugar very often.  One of the work things I do is design closed loop control systems for industrial processes, so naturally, I came to understand what was going on in terms of a closed loop control system.   So perhaps my explanation will put your wife's mind at ease. 

First of all there are four ways glucose is removed from the blood stream.  It can be converted to fat via insulin, stored in the body tissues  as glycogen (http://dictionary.reference.com/search?q=glycogen), burned during exercise, or dumped to the urine.  Most type-2 diabeties results form over consumption of carbs.  The body tissues become glycogen saturated and so the body begins producing insulin to store the excess glucose as fat.  At some point the body stops storing fat and dumps the excess into the urine.  There are variations in glycogen capacity, fat storing capacity, etc between individuals.  That's why some people can get to weigh 800 or more lbs couldn't get that fat no matter how much they ate.    It's my understaning, for example, that Austrailian aborigines almost always develop diabetes within 6 months of moving from the countryside to the city and it dissapears completely in a similar time frame when they move back. 

As I mentioned earlier I measured quite often, sometimes hourly so I could see what was going on.   I noticed that there seemed to be two control loops involved.   One with a short time constant (a few minutes) and one with a long time constant (an hour or so).   From my reading I surmise that the shorter time constant is related to the glycogen mechanism and the longer time constant is releated to the insulin mechanism.   I also noticed that potatoes are bad, very bad, and that steaks are good.   

Most doctors don't have an explaination of why a diabetic's blood sugar levels are higher in the morning than at night before going to bed (with no meals during sleep of course).    My hypothesisis is  that this is the result of the body trying to rid the body tissues of glycogen.   What I do now is measure twice a day, just before bed and first thing in the morning.   When my sugar is under good control the readings are lower in the morning than at night.  If it gets higher or closer to equal then it means I have to back off the carbs for awhile.   I don't take insulin and probably never will.   

I find your comments about your wife consuming carbs surprising.  I suppose she is doing that because of the pregnancy but it is surely aggravating her diabetes.   If it were me I would ask the doctor about it.   Maybe she could not eat potatoes and rice?    I walked out of the "diabetic" class my doctor sent me to because the nurse was contridicting herself.  She was telling us that we should reduce our carb intake and at the same time showed us the food pyrmid that says one should eat mostly potatoes, pasta, bread, rice, etc.   I asked her to explain and she couldn't or wouldn't.  When she wouldn't acknowledge the contradiction in her presentation I walked out.   Tell your wife to not woryy about diabetes.  If she gets it permantly she will have to look forward to eating steaks. ;)  Hope this is helpful.





Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: SSH on Wed 13/07/2005 10:15:26
Actually, now she is following the Dr Bernstein diet (see Amazon for his books) which is a very-very-low carb diet. I mean, she takes cream in tea instead of milk becuase it has slightly less carbs! Atkins to the max.

It seems to work most of the time, but she does get a bit depressed about it sometimes, pigs out and then gets her sugars too high. But she is able to control it most of the time without any insulin at all, evenr though they think she has type 1. Wierd.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Ishmael on Wed 13/07/2005 12:03:00
Quote from: Geoffkhan on Wed 13/07/2005 05:58:31
I wash my hands a lot, too. Well, not an unusual amount, but sometimes my hands feel a little bit dirty and I have to wash them to feel better.

Heh, I do that too... The rare cases I get the feeling that my hands are really dirty, I just have to wash them... And for some reason I'm not very found of doing anything that I get hands dirty in...
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Oliver on Wed 13/07/2005 18:22:19
Hahah, I have that hand washing thing too. Even If I've just washed my hands, walked around the house for a few min and then went to the kitchen to grab something to eat I HAVE to wash my hands, even tough I haven't touched anything since the last time I washed them. Or whatever, if it makes sense.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Hakujin on Thu 14/07/2005 08:29:42
Hmmmm. I have chronic lower back pain. Have had it for about five years. I can't sit down for more than five minutes without it coming on and saying on for hours or even days. I've seen every type of quack, but it won't go away. Exercises help calm it down, but after 5 years of it, I'm afraid it's here to stay.

I have bad mood swings too, usually between normal and depressed. It has little to do with lifestyle. My hormones just seem to swing all over the place despite how good or bad my life is going at the time. I could take it more if it had more ups. That being said, I suppose I'm greatful that's all I've got. From reading this thread (and knowing other people) I could have much worse problems! If this is all I have to deal with, I think I'll be ok.

I guess it's good to have at least one thing wrong with you...then you can join in threads like this one!  ;D
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Blitzerland on Fri 15/07/2005 19:13:52
I had Namonia (sp?) when I was four, does that count?

I also have this wierd condition (not really an illness, but still painful and annoying to me and those in my path) in which my mind "sticks," usually after awakening from a bizarre dream. I'll wake up and have this one thought in my mind, and I'm totally unable to stop thinking about it. I literally can't do anything but overanalyze that one thought.

This just happened to me again this morning. I couldn't eat, sleep, or drink, so what did I do? Went online and posted on this forum and pissed people off, only to be embarassed at myself later.

I wonder if they have a name for it. If not, it could be called "Blidumbasszersyndrome."





Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Dart on Fri 15/07/2005 20:17:11
Quote from: Tiki on Wed 13/07/2005 02:38:41
I also tend to do things, be positive that I did indeed do them, but run back to make sure anyway.  "Did I close that door?"  etc.

The exact same situation here... except it's mostly with me and my alarm clock. Like at night, I'll turn on the clock alarm and then scuttle off to bed. But then when I'm under my covers and I'm about to fall asleep, I'll ask myself "Did I REALLY turn on my alarm? I don't want to be late!" and then I'll get out of bed and check. Then I'll once again almost fall asleep in bed and once again check the alarm. Repeat another 3 times, and you'll have my weirdness. >_<
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: DoorKnobHandle on Fri 15/07/2005 20:36:51
*ignore this crap* (even better - delete it)

For some reason when I wanted to modify it created a new reply from the original post. Maybe I've just gone insane or the forums did...
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: DoorKnobHandle on Fri 15/07/2005 20:38:57
Quote from: Dart on Fri 15/07/2005 20:17:11
Like at night, I'll turn on the clock alarm and then scuttle off to bed. But then when I'm under my covers and I'm about to fall asleep, I'll ask myself "Did I REALLY turn on my alarm? I don't want to be late!" and then I'll get out of bed and check. Then I'll once again almost fall asleep in bed and once again check the alarm. Repeat another 3 times, and you'll have my weirdness. >_<

I think this is considered normal to a certain degree. If not then it should be... ;)

(Although checking it like 3 times in a row is a little extreme I have to admit).
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: LimpingFish on Fri 15/07/2005 22:25:59
OCD! OCD!

For (does mental aritmatic) 10 years now.

Not so bad. Free floating anxiety becomes quite soothing after a while. ;)

UNCLEAN! UNCLEAN!

Medication helps. Up to a point.

Gotta just go with flow, I suppose.

Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Domino on Fri 15/07/2005 22:59:04
The Dreaded Obsessive Compulsive Disorder.  I know what it's like because i've had it since i was a kid.

I still find myself checking my alarm clock to make sure that i set the right time, and double checking, but not as much lately because i'm starting to realize that i did set the right time and i shouldn't obsess over it.

I also find myself checking to make sure doors are locked and lights are off and also make sure that certain items in my house are unplugged before i leave for work in the morning.  In rare instances i have gotten to my car and went back up to check again. (This becomes annoying)

But i do have GAD (Generalized Anxiety Disorder) which sucks, because i get nervous and have panic attacks for no reason. This is something i have suffered with for awhile, but now i am realizing that i have to take care of this and now looking for treatment.  It's not a fun thing to have, but i'm coping.  I just have to change the way i think and that is the first step in getting better.  I think really negative alot, and that causes me to get anxious. But like i said, changing the way you think can really make a person feel alot better.

This is the first time i mentioned my GAD on this Forum, and if anybody else is suffering from it, I know what you're going through.

Wish me luck in beating this Demon.  :)

Shawn
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Squinky on Fri 15/07/2005 23:04:06
I do the whole checking things too. Prolly more extreme than some other people here, but I've recently got control over it.

It was to the point that I would lock the door, then jiggle the handle a few times to make sure, then I started doing it with my offhand too....I'd have to start counting to a certain number of jiggles eventaully...It got pretty lame....

The alarm clock and checking if things were turned off used to be a problem too, but now I just let my gal do it....heh.

I think I must have been under some stress back then, because I rarely do it now. 
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Blitzerland on Fri 15/07/2005 23:12:48
I used  to obsess over how I ate my cereal. I could only eat two pieces at a time, otherwise I'd throw out the entire bowl and pour another.

I also refuse to drink water from the same glass twice without washing it.

I can't just start a new level in HL2, I have to play all the way through the game to get to that level, otherwise it feels like cheating.

Oddly, I haven't been stamped with OCD. Maybe I'm lucky. Maybe I'm just a freak.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: HeirOfNorton on Sat 16/07/2005 01:57:19
I think a lot of people are mildly OCD. Like with me, if I step on a crack I feel...uneven until I step on another crack with the other foot (in the same spot on the foot). My sister was the same was as a kid, and my niece is starting to do it too. It's SPREADING!!!

Otherwise, my only chronic disease/syndrome/thing is a strong case of Glaucoma. It makes my eyes feel like this  :o, and I could go blind at any time (like Kirby Pucket). So far so good, though.

(Hey, if I DO go blind, I'm gonna try to learn DareDevil's SONAR sense. If bats can do it, why not me?)

HoN
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Ozwalled on Sat 16/07/2005 03:28:23
I got really sick when I was 13 with the flu (had a fever of 106) and haven't been the same since, really. Since then, I'm tired a lot and get sick more often than the average person, and tend to stay sick longer (like having colds or flus for several weeks or even a few months at a time, sometimes), even when I try to take really good care of myself.

In the past few years, I've bene getting sick a little less often and for somewhat shorter periods of time, though. Still, I'm pretty much always tired.

I've been to the doctors about it too much, and they can't ever figure out what's wrong.

It sucks, but after a while, you sort of learn to live with it.

I also have alergies to a bunch of things (though none of them are very severe).
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Etcher Squared Games on Sat 16/07/2005 04:12:02
I have "Moderate Obstructive Sleep Apnea".

http://www.stanford.edu/~dement/apnea.html

It's a condition where my airway gets blocked by...well itself as I sleep.Ã,  The "soft palette relaxes bla bla bla".

It's the cause of my snoring and a HUGE sorce of my depression.

Thankfully the most common cure works for me... a cpap machine
Continuous Positive Air Pressure

http://www.cpap.net/manufacturers_cpaps/respironics/REMstarPluswithcflex.htm

Basically, raise the pressure of the air inside my throat as compared to the outside, thus expanding the airway.

The one problem with this solution is finding a comfortable mask.

the full one
http://www.cpap.net/manufacturers_cpaps/resmed/UltraMiragefullfaceMask.htm
tended to be huge and clunky and annoying...

the nasal one
http://www.cpap.net/manufacturers_cpaps/resmed/UltraMirageMask.htm
worked a bit better.


But what's called the nasal pillow
http://www.cpap.net/manufacturers_cpaps/resmed/resmedswiftmask.htm
is just wonderful and I can sleep in my weird contorted fashions now without having to worry about the mask getting in the way of anything.



So, now I can sleep without waking up once every 2 minutes as my sleep study from a year ago showed I did.

(and yes my girlfriend has mentioned I do sound like someone when I sleep with my CPAP....)



(http://www.starwars.com/databank/character/darthvader/img/movie_bg.jpg)
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: PsychicHeart on Mon 08/08/2005 07:50:30
i have recently realised that i cannot brush my teeth in a bathroom without closing the door. I'm not sure if that qualifies for OCD or not, but i thought i'd post it up here for laughs/ 'i feel your pain'.

Cheers,
Fluke.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: big brother on Mon 08/08/2005 08:02:44
I wouldn't worry about it, Fluke. As puberty hits a young male, he will often "brush his teeth" with the door closed (hopefully locked). He may do this several times a day even. It's a perfectly normal, natural thing.Ã, 
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Nacho on Mon 08/08/2005 10:01:14
Does phobia to coackroaches (sp?) count as a disease? I have doubts, but if that thing of checking the alarm is accepted as a disease or a dissorder, my phobia should be considered too, because it does alter my life aswell... I walk very carefully in garages, I do look at the corners, I don't go to restaurants in front of the beach because that there is their territory. Anybody else here with the same problem?
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: [Cameron] on Mon 08/08/2005 11:40:26
I suffer from Chronic Sleep Deprivation. The only advice I've got for this: Have no distractions in the room and try to sleep. Shit, why didn't I think to do that? Oh I know.... I tried it for 3 years and it didn't work. :P
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Gijs on Mon 08/08/2005 12:44:57
Two years ago I had something I don't know the name of. I was really scared to get sick, so every time I touched something like the floor I washed my hand with soap. I was also really scared to make other people sick, so I never really touched someone.
After a couple of months it became really scary, because of all the hand washing with soup my hands became really really dry, and when I made a fist the skin of my hand popped open!
But then my parents bought a cute little dog and everything stopped from there.

I'm also an extreme day dreamer. I'm almost the whole day in another place.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Nacho on Mon 08/08/2005 14:03:25
(http://www.mi-direccion.com/divx/cover/MEJOR%20IMPOSIBLE.jpg)

This guy had the same problem...
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: on Mon 08/08/2005 15:05:58
I have allopecia, which isn't a chronic illness, but is more of a "disease". That doesn't make it sound so nice either, all it really is, is an un-natural loss of hair, bald patches etc. Hence the cap, constantly. Other than that, apart from my body being made out of wood or something & occasionally giving me gip, (aches, pains, fungel infections, eww - etc) I'm fine. Adopted & colour blind too, but they're not diseases :P

Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Andail on Tue 09/08/2005 02:10:29
Allergic to some stuff and sometimes suffering from itching rashes.

Apart from that, I'm all fine.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: LGM on Tue 09/08/2005 03:46:20
Colour blind, eh? No wonder your white balance always sucks in your films ;)
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Nacho on Tue 09/08/2005 09:03:19
I haven't realised you had allopecia Mark (even in the pics when you had hair) Shaved head make you sexy, though...
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Andail on Tue 09/08/2005 15:15:09
I know because Mods told me once, but I have to say that baldness sort of fits him....if I had had allopecia, I would prolly look like crap
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Elliott Hird on Thu 25/08/2005 09:57:04
Autism -> aspergus. Long story, don't ask. (okay, time to start forming complete sentences.)

I have insomnia too, and a bit of paranoia. Not being able to sleep because you're scared of kiddish stuff really, really sucks.

Might as well do an intro, after all, it is my first post... I'm Elliott Hird. I'm new to these forums. I am an expert in short and rubbish introductions. This is the most spammiest post I've ever posted :O.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: voh on Thu 25/08/2005 18:42:17
I am allergic to bandaids. All of them. It's fucking annoying. Athlete tape? Allergic :P

I've got a weak heart, small valve dysfunction, irregular heartbeat as well as heart noise. I've got chronic bronchitis as well as asthma. I have weakened joints due to a grow spurt I had when I was lots younger - causing my ligaments and muscles to be underdeveloped. That sucks.

I am also 75% blind - but thankfully I am at the low end of contacts - so I can be semi-blind in style :D

I'm a mess, but I ain't breaking. All kinds of small things trouble me, but they haven't stopped me from enjoying life, and they sure as fuckin' hell won't :)
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Kinoko on Fri 26/08/2005 05:07:25
Good attitude, voh!

Er, I found out I have heaps of blood in my urine a few months ago, and I got tested for everything and they never found out what it is.

Thats as close as I come to having anything disease related. Never even broken a bone before. I did have my molars out, and I had an ear infection when I was 10.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Quintaros on Fri 26/08/2005 05:57:20
I had blood in my urine for years before my family doctor finally referred me to a urologist.Ã,  Turned out I had kidney stones due to a mishapen kidney.Ã, 

Had the stones removed in Feburary as well as some re-constructive surgery on the kidney itself.Ã,  Don't think it solved the problem though.Ã,  I can feel more stones inside and am expecting to see blood again any day now.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Kinoko on Fri 26/08/2005 07:55:05
Well, I dont actually see visible blood, my urine is just full or red and white blood cells. I was tested for various things, including STDs, I had an ultra sound which showed no problems... it took about 6 or 7 visits to the doctor and so much cup peeing I was quite the expert by the end, but they never found the cause and as far as I know, its still happening.

Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Nine Toes on Fri 26/08/2005 11:32:37
Oh.  This thread has been revived.  Well, I suppose I'll toss in my chronic illness(es).

Um, well, for starters, I was diagnosed as a manic depressive.  I'm also bi-polar, and I have ADHD.

I know those probably don't qualify as illnesses in some peoples' books, but for me it's close enough.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Vince Twelve on Fri 26/08/2005 11:36:34
I have no uvula.

Seriously.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Nine Toes on Fri 26/08/2005 11:42:59
O_o... oh, "uvula"... I thought he wrote something else.... :j

So you can't snort like a pig?

Were you born that way? Or did you have it lasered off to keep you from snoring?
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: voh on Fri 26/08/2005 14:32:41
ADHD-baby here too, but I don't normally count that under chronic illness :P

Also, non-chronic problems have been had with my kidneys (infections, yay!) :)

Life would suck without my little quirks ;)
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Ishmael on Fri 26/08/2005 15:06:01
I don't mean to sound rude, but I'd appreciate it if you told something about them illness's, as I have no faintest idea of what ADHD for example is. And reading it's diagnosis from the dictionary is much duller than reading someone describing in what condition the illness is for them exactly.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Vince Twelve on Sat 27/08/2005 03:49:23
Quote from: Mr. Hyde on Fri 26/08/2005 11:42:59
So you can't snort like a pig?

Were you born that way? Or did you have it lasered off to keep you from snoring?

Actually, I can still snort like a pig.  However, I used to be able to do a great Chewbacca impersonation, but now it just sounds like that angry bum who lives down the street.

And yes, I had it lasered off (quite a strange experience, breathing your own burning flesh...) but not because of snoring.  I had woken up unable to breath and been rushed to the emergency room three times during high school  because the thing had swollen up to the size of my thumb and lodged itself in my throat (gross, huh?) and none of the doctors I went to had any idea why it was doing that.  Finally, one doctor said, "Y'know... you can just have that thing cut off..."
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Ozzie on Sat 27/08/2005 05:44:57
Diabetic. I guess I don't need to say more.
And I'm allergic against nuts. Just in case you might think of it, no, not THAT nuts. More like walnuts, cobnuts, but NOT peanuts and coconuts, because, actually, they ain't really nuts by definition, only by name.

And I have the same, ehm, symptoms Gheoffkhan mentioned earlier, so I just quote him. Actually, it would be even an understatement to see it as an exaggeration to call it a disease, but it seems like this is the right place to moan about everything, then just let's do it.
Quote from: Geoffkhan on Wed 13/07/2005 05:58:31
Hmmm... if I leave a refridgerator door closed, but not completely closed for sure, it bugs me. I have to open the door and close it again.

Also if I squeeze a ketchup bottle when I'm using it, but close the bottle too fast, so it's remains partially squeezed because of the pressure inside -- that bugs me too. I have to open the ketchup bottle and let all the pressure out and then close it again. :P

I wash my hands a lot, too. Well, not an unusual amount, but sometimes my hands feel a little bit dirty and I have to wash them to feel better.

EDIT: Or if a pencil is slowly rolling off a table... I HAVE to stop it from falling off the table. It bugs me. I'm a weirdo. :(
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: auhsor on Sat 27/08/2005 13:01:55
I found out this year that I'm allergic to penacillan. I got a nice rash almost all over my body which lasted a couple of weeks and was very uncomfortable. A pic is here (http://auhsor.multiply.com/photos/hi-res/5/33.jpg?xurl=%2Fphotos%2Fphoto%2F5%2F33.jpg) if you really wanted to see.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Nine Toes on Sat 27/08/2005 14:28:00
Quote from: auhsor on Sat 27/08/2005 13:01:55
I found out this year that I'm allergic to penacillan. I got a nice rash almost all over my body which lasted a couple of weeks and was very uncomfortable. A pic is here (http://auhsor.multiply.com/photos/hi-res/5/33.jpg?xurl=%2Fphotos%2Fphoto%2F5%2F33.jpg) if you really wanted to see.

Sweet Jesus! :O

Ishmael:  ADHD is an acronym for Attention Deficit Hyperactivity Disorder.  I honestly don't know much about it, the doctor just said, "You have ADHD.  Here's some lithium.".  There are times when I get extremely hyperactive (won't shut up, being really loud and obnoxious), and I'm really twitchy; I rapidly tap my foot or bounce my knee for long periods of time, or tap my pencil on my desk in high school, I pretty much can't sit still at times.  And there are also times where I can't focus on what I'm doing (especially if it's boring me to death), so my attention is constantly drifting away to other things.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Ishmael on Sat 27/08/2005 14:54:50
Thank you, Mr. Hyde. I can see some of the symptoms(sp) in myself too ::) Well, atleast the not being able to sit still. Not all the time, but still...
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: PyroMonkey on Sat 27/08/2005 14:57:50
All I really have is mild ADHD.
Unfortunately, this is evil when it comes to making games, unless I'm really inspired or something I get distracted and start IMing, websurfing, and gaming.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Haddas on Sat 27/08/2005 22:25:06
An Aquaintance I know suffers from severe ADHD. As in, they have to keep him constantly medicated. I don't know if they do that anymore, but atleast they used to give him amfetamine just so he could go to school.
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Colxfile on Sat 27/08/2005 22:40:39
Well, I was diagnosed with Crohn's disease aged 14. It took about 9 months to determine what was wrong with me (Always being sick, loss of appetite, losing weight, hardly any strength for someone my age). My doctor initially thought it was the fault of a parasite. It was only when I went to the dentitst he remarked "Your gums wouldn't look like that if your teeth are fine...". I went to hospital and after an endoscopy (Camera down the throat)... they couldn't be certain. They sent me to Alder Hey Children's Hospital in Liverpool (This was at the time the organ retention scandal broke, I believe). They did a colonoscopy (Camera inserted up my rectum and beyond) and diagnosed me with Crohn's. It's a permanent fixture in my life that I deal with. If I ever have a bad moment when the disease 'flares up', it causes ulcers to form in my gut (Pretty much from the top to the bottom), this stops me from absorbing nutrients from my food, meaning I don't put on / retain weight. Which invariably leads to people thinking I'm anorexic. I haven't had a flare-up for early five years now. I don't intend to have one again, if I can help it. Aside from appetite, it doesn't affect me at all. Although it's a difficult condition for me to make light of...

I also suffer from a lesser known condition, referred to as 'being me'. It causes me to think I'm smarter than I am and feel an overwhelming desire to try and make people laugh. It has also made we skilled in the art of procrastination. It cannot be cured without a great deal of pain. Like Crohn's, it's something I live with :)
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: voh on Sun 28/08/2005 00:32:13
I got the diagnosis ADHD, but I wouldn't just slide everything thats wrong with me mentally onto the lap of ADHD - whatever the cause, I should be able to amend it myself. If not, then not - but I'll never go on Ritalin as they want me to go ;)
Title: Re: The Long Overdue Post Your Chronic Illness here
Post by: Athirwen on Mon 29/08/2005 15:58:33
Saw this and thought I'd add my two pence worth.

I'm epileptic. Annoying, but I can live with it.