The Long Overdue Post Your Chronic Illness here

[SSH]

Actually, I was more looking for anyone with diabetes who could tell me that they get by fine despite it, becuase my wife unfortunately had to go into hospital last week with hyperglycemia (high blood sugar) and hyperketosis (toomuch fat being metabolised). These are particulalrly worrisome due to the pregnancy, although it is the pregnancy that has caused them. She's worried thoguh that she could have diabetes permamnantley (of which there is a small but tangible risk) although her (much milder) case did go away after our first child.

So, if you've got diabetes and you get by fine, then please post here, or PM if you prefer to keep it private. But also, I thought it might help some people if they could share their experience with other chronic illness. Of course, no doubt there will be a few jokes about some VD or whatever, but I think there can be some support on this forum, and not just on the best way to use SetCharacterTransparency...

[dasjoe]

just some links for you. i haven't got diabetes, a friend of mine does.
she's pretty normal, doesn't need to live on a diet, but she has got a pump which is permanently (not permanently but nearly all the time, you can take it off) connected to her.
all i can tell is she lives like everybody else, does the same things as (syntax?) we all do.
some years ago she had a syringe for giving herself the insuline, now the pump does that.
if it's not permanent a syringe would be the better solution, you don't have to think of your pump and don't need to put tape on the permanent needle when you're bathing.

just ask me about it, and i'll report what she says.
i hope this helps and your wife is feeling better soon.

http://www.diabetes.org/home.jsp
http://www.diabetes.org.uk/home.htm

i should go to gb and learn proper english.. this sucks, some words are just missing..

[Ishmael]

I am quite unique. [sp?]

Anyone ever heard of something called Achromatopsia?

Well, to basically explain it's genetically transferred, and only appears on half of the children when both of the parents have the gene. (This means my parents are most likely related, from somewhere wayy up the family trees). I'll quote the dictionary: "a visual defect marked by total color blindness in which the colors of the spectrum are seen as tones of white-gray-black", also, " the ability to see daylight missing", don't know how to actually say that in english, but basically I need to squirt all the time, and outdoors I need very very dark sunglasses so the sun (even if behind a cloud) won't disturb my vision. And one other thing, I see quite less as accureately as normal people. I need glasses of nearly +4, tinted ones. It's like setting your screen to a lower resolution, or trying to see detail in a photograph resized to quarter of it's original size.

Really hard sometimes, but I live and study like everyone else (apart from the fact that I'm nearly insane...), I need to look at stuff much closer then others. MUCH closer. I need to sit 2-1½ meters from the TV to see the subtitles. (we have a quite big widescreen TV...)

Read something about it here: http://www.achromatopsia.org/
(heh, "wobbly eyes", new expression to me, I know what it means, I at least sort of have it)


Capich?

----- EDIT: I friggin cannot even type my chronical illness right... -----

[R4L]

I betcha someone in the forums is a Chronic Masturbator!

[Ishmael]

Your lightweighted aproach to this matter disturbs me, but I do posses a sense of humor

[Haddas]

I, to a certain degree suffer from chronic paranoia. Combine this with a hyperactive imagination and watch a scary film. I have lots of weapons in my room, just INCASE someone would try to kill me. I can't watch some scary films. Anything with zombies in it usually makes me lose sleep. I try telling myself " Come on, you're being silly! Being scared of those things is childish!" Then I feel bad and scared.

[Pet Terry]

My friend has had diabetes for over ten years now. He lives pretty much like everyone else, though he has syringe and he have to give himself insuline few times per day. He used to carry pack of raisins with him incase he started feeling dizzy, but nowadays he just has chocolate or something sweet. So if you don't know about his diabetes, I bet you wouldn't know he has it.

EDIT: Eep, somehow I got cinnamon and raisins mixed up.

[Mephistophilis]

I think one of my mates is Achromatiosiac It is a think but He's Colourblind and wears most funky Shades all the time. Personally I think I'm a partial Insomniac, It takes me Ages to get to Sleep... Kinda sucks.

[pandaneverlogsin]

My little sister just contracted type 1 not too long ago. here's how we get thru it..
We're trying to get an insulin pump. no shots, and easier to regulate
take advantage of the atkins craze..all this low carb stuff is great for diabetics.
It isnt too bad I guess...you have to be very aware of your blood sugar, and always carry around some gum or some juice or something, and eat at regular times. Its a pain, but very managible.

for more info, go ahead and email me, pandaman424@yahoo.com

[R4L]

Sorry for the humor I had in this thread. I didn't realise how serious this was. My Grandma Everson died from diabetes...

[Mr Jake]

and about the life style change
You can get Special cakes and all sorts for diabetes, you dont REALLY need to go without anything, you can still have some sugar you just have to cut back (quite alot, but you can still have the odd bit) (depending on how serious it is) Im sure she will do fine... she puts up with you well enough....Ã,  :

edit:
I also have this problem:

I, to a certain degree suffer from chronic paranoia. Combine this with a hyperactive imagination and watch a scary film

(taken from Haddas's post)


(duh)

[SSH]

She actually has to keep her ketones down as more important than blood sugar. A few high readings on the blood sugar don't makea difference   (and just mean a bit more insulin is required anyway) but the ketones can lead to acid blood which can damage the baby. So she has to eat lots of carbs and avoid vomiting (she's on anti-naseau medication too).

[Nacho]

I have a disease in the neural cells in charge of the motion. It is slightly related with Stephen Hawkings' disease, but don't be afraid, people who loves me! it's not so serious, no way. It is quite annoying... I can't play the guitar because my left hand is weak (I can't light on a lighter). There is a big list of a lot of little and silly things I can't do, but it's not serious at the moment.

I was diagnosed 12 years ago, and it hasn't advanced a lot... The doctor is very happy with me, and I'll go on doing sport, because, apparently, it helps in my case.

[Darth Mandarb]

I'm mildly dislexic (meaning I see things backward) and for years, when we didn't know it, most people just thought I was stupid.

I taught myself to work around it, but it still slips in every now and then.

Sometimes it happens when I write too.Ã,  I have to visualize everything I write to ensure I don't write it wrong.

A fun part of it is that I'm pretty good at pronouncing words backward ... which can be fun at gatherings!

[Mr Jake]

I'm mildly dislexic (meaning I see things backward) and for years, when we didn't know it, most people just thought I was stupid.

Im starting to think that I have the same sort of thing (Ive noticed recently that sometimes I read numbers completly wrong and jumbled up etc. and I have never been good at spelling etc.)

[Shane 'ProgZmax' Stevens]

As a child I had one of the worst cases of Asthma the state I lived in ever saw.  I basically would spend months at a time in the hospital on respirators with an IV in each arm, and at that time I was allergic to something like 120 allergens (incredible!).  As I've gotten older, fortunately, I have overcome Asthma and instead of taking pills and using an inhaler every day I get by with an inhaler every once in awhile.  Another bonus is that I tend to have fewer seasonal allergies than other people since my immune system has been fighting for so many years.  There were a couple times where I could have died as a kid, but I was lucky to have parents that didn't take chances and took me to the hospital.

[rtf]

I have a tiny tiny tiny bit of autism (about 1%), and I have a little bit of OCD. Both are genetic.Ã,  I was really hyper from about 1st Grade to 5th grade, but I'm proud to say that that's all changed

I had surgery to replace 2 hearing bones with a titanium alloy a year ago, and I got my tonsils out.

My teeth suffer from Misalignment Position, but treatment is underway (and it sucks).

One of my best friend's older sister, and one of my younger sister's friends have diabetes.  They are doing great (although I haven't seen my friend's sister in a few months because she is abroad).

[AGA]

I'm diabetic, and have been since I was about 18 months old.

It'll probably take awhile for your wife to get used to having to watch what she eats, limit her carbohydrates etc, but it hardly stops you living a normal life.

One of the biggest myths about diabetes is "you can't eat sugar", which is crap. You can eat as much sugar as any ordinary person would, you just can't eat as much as a fat person would

[MrColossal]

Then I think us Mitteners should talk to you about your soda intake, AGA...

[remixor]

I have a rather severe case of scoliosis, but it's congenital, meaning I've had it from birth rather than developing it due to poor lifting habits or sports or something like that.  Basically my spine curves twice at about a 90% angle.  It evens out such that I still stand up straight (though I have to consciously put effort into it or I'll sort of slouch to the left a bit) but I'm a whole lot shorter than I should be (I'm incredibly short, whereas everyone else in my family is quite tall).  I've had three major back surgeries in my life (one was when I was only a few weeks old though so I don't remember anything about it) and two spinal fusions.  When I was in kindergarten and very early elementary school I had to wear a back brace all the time, which was pretty shitty considering how mean kids can be at that age.  Pretty much I can't play contact sports and I have to be really careful about impact to my neck or spine.  I think at this point the condition is fairly stabilized, which means it probably won't get worse, or at least it will be such a small gradual change that it's not a big deal.  The downside is that so much work has been done to keep it from getting worse that if in the future some sort of revoloutionary treatment is discovered it'll probably be too late to do any good for me.  Overall it's not really a big deal, though.  Since it's been a lifelong condition (like most of the stuff people here have described) I'm pretty used to it.